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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: re your 'head circumference' study and…

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › re your 'head circumference' study and… › Reply To: re your 'head circumference' study and…

June 24, 2011 at 8:59 pm #1254
momcat7
Participant

Your theory on “Endrocrines gone wild” is why I’m here I was on a research binge and found some of your info. I have it printed out in triplicate for my specialist who is a rheumatologist who encourages me to bring in information for she and her staff. If anyone will help me go forward on this it will be her. I don’t think we will be able to take Diomax due to sulfa allergies. I am checking with our pharmacist for any counter indications and crossover problems with Zantac/Zyrtex and my diabetic meds. I have a med mix at the moment that is good for me..but if I have a flare not much helps and I am totally incapacitated for awhile. I began taking phentermine a couple years ago based on a study I read out of mayo clinic. My pain levels were off the charts and I was reacting to everything. The idea was that it might work as a central nervous system analgesic for some people. READERS NOTE THIS IS A DANGEROUS DRUG >>DON”T READ THIS AND THINK TO TRY SOME. It is a controlled drug and can be addictive for some people. I did not have any of the heart issues and blood pressure problems that are not good with the drug so I was able to try it. It has been good for me, but I won’t even let my son consider it. It is also one of those drugs that can cause serotonin overload. I think it somehow helps me with the “lowering of pressure” you speak of. The difference with and without it for my POTS and fatigue is amazing. It would be great to go off a med like that if Zantac can help.

FYI I have requested my son’s head measurements from my doc. Crossing my fingers that they have them

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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