My son loses vision in one eye frequently throughout the day. All his eye exams, including the retinal test, comes back negative. Although the neuroophthalmologist said the area where his nerves come together has a smaller opening so he feels this is pinching on the nerves. I feel that yes, this may be contributing, but this came on suddenly (about years ago now, when he was about 16) which tells me that it may be something more? I was just diagnosed with EDS – Classic and Hypermobility. I am also sure (still working toward getting to docs) that I have POTS and Mastocytosis (or MCAD). My son exhibits many signs of EDS but not POTS or Masto. Does it seem like there are eye issues with EDS? Could this be what’s causing his issue? He’s learned to live with it, and that was the docs suggestion, instead of pursuing it further (I think he didn’t want to admit he was stumped…he was one of THOSE). Are there any other tests I should have him go through and which kind of doc would do them? He’s had MRI’s in the past for sinus issues (nosebleeds), migraines, and narcolepsy (all of which he has), but all tests always come back negative. I appreciate everyone’s ideas/thoughts on this. Maybe we’ll touch on something that I can bring to my docs. Thanks!