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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Jugular Valves

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Jugular Valves › Reply To: Jugular Valves

September 19, 2011 at 2:44 pm #1479
Dr. Diana
Keymaster

Hi Dr Diana,
Mast cell treatment, must admit I don’t know much about that so will have to look into it 😉

I do not have significant reflux (but I have *a little*) in my veins but I often getting fluttering/pulsating sensations roughly where the valves are (mine are assymetric). I always thought I was getting some sort of strange sensations in my thyroid gland but now I realise it’s vein/valve related.

What did they do to modify your valves? If anything?

Have you read about Dr Zamboni’s new thoughts on the valvulotome for the IJV? I feel this is heading in the right direction… For me personally I do not have MS so I guess I can currently say there’s no doubt in my chicken and egg scenario (no pun intended!) so WHY am getting stenosis – my money is on faulty valves due to hypermobility.

And the possibilty of Lyme – still 50/50 on that one.

Hi Chicken Boo, for more info on mast cell disorders, tmsforacure.org is good — and I have a video out with a link to the latest protocols, or you can find the article under “handouts”. Worth your time! For my valve they ballooned the heck out of it! Yes, I know all about the valvutome from Dr. Sclafani, actually. Valves are a work in progress. My valve was asymptomatic for 46 years! I do know that mast cell mediators can actually change our collagen from type 1 to type 3 (which is much “looser” and “leakier”). That is what happens in varicose veins… Hang in, OK? 🙂

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