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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Does this joint problem sound like EDS? Any tips?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Orthopedic/Joint › Does this joint problem sound like EDS? Any tips? › Reply To: Does this joint problem sound like EDS? Any tips?

August 25, 2011 at 9:34 am #1407
em
Participant

I also had similar experiences with chiro. I ended up getting a really fantastic physical therapist instead though who did some manipulation (but so much more subtly) coupled with exercises/stretches that helped the effect last longer. I wonder if your chiro could show you some stuff to do on your own?

In terms of sitting, have you tried using pillows or blankets while in front of the tv? If I’m sitting with my legs folded and to the side, I put something between my knees. I also move around a ton otherwise everything hurts. (Fortunately my ADHD means that moving around every 5-8 seconds has been a lifelong habit.) I often lie down on the couch with one or both legs up against the wall or sit with one leg draped over the arm rest. (My grandmother does the same, so even though it looks sort of silly, I just claim it as family tradition.)

Also, because I can’t seem to shut up today and this stood out to me,

Is this what you guys experience too (though I realize I’m probably a mild case).

If your journey has been anything like mine, or like many of the stories people have been sharing, you’ve had doctors, friends, family, et al. diminish and dismiss your symptoms and experiences. I have no idea if you’ve got a ‘mild’ case or not, but it doesn’t matter. Either way it completely sucks. So no need to qualify your statements. You’re among friends here. 🙂

Take care.

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