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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Chronic Lyme, anyone?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Chronic Lyme, anyone? › Reply To: Chronic Lyme, anyone?

September 19, 2011 at 2:52 pm #1480
Dr. Diana
Keymaster

Hi Dr Diana,
Do you have any good links/or explanation for what mast cells are and how/why top treat them? A quick search on Google brings up a lot on treating mast cell tumours in dogs :-/

I’m currently doing the FODMAP diet which is lactose, gluten and some fruit/veg free – it’s helping my IBS a lot but I still wake up with a ‘stomach ache’ each morning that almost feels like my stomach has been clenched all night, if that doesn’t sound crazy.

I do feel that glandular fever was my trigger – I am almost certain it started my thyroid problems (it’s called GLANDular fever after all) as I’ve had fatigue and less-than-normal energy levels since that happened. I suffered quite badly with it for about 6 months.

Hmm, I have things such as Lymphocytes and Leucocytes if they are of help?

So, were you treated for Lyme or did you decide that something else was at the bottom of it all?

Hi Chicken Boo, Please check out tmsforacure.org for lots of mast cell info. On this site under “handouts”, you’ll find an article on the latest mast cell protocol. It’s a good one! My kids and I take a double dose of Zantac and Zyrtec (ask your doctor!) and have added Cromolyn Sodium, and are doing much better. We still have break-through attacks, though. I’m working through the steps to get in to see a mast cell specialist. My mom is in the same boat (we like to make these things a family affair. ha) Glandular fever is a big trigger for many of us, I understand. I was tested for Lyme no less than 4 times. I don’t have Lyme, but we have so many overlapping symptoms, my theory is that we may both have stagnation of the fluid dynamics in the brain, causing mast cell degranulation and the immune cascade starts tipping over our dominoes! Comparing notes with our other “family members” — Lyme, chronic fatigue, fibromyalgia, Alzheimer’s, Parkinson’s, etc should help us figure this out sooner. THAT’s my mission. 🙂 Diana

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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