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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: PVC's with every new drug! What does a POTs and EDS person do!!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › PVC's with every new drug! What does a POTs and EDS person do!! › Reply To: PVC's with every new drug! What does a POTs and EDS person do!!

December 5, 2012 at 8:47 pm #3197
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Participant

Thank you Robert

Its nice to know someone else out there gets the same sort of problems. I have tried BB,CCB,Ivabradien, clonidine, all the usual suspects and not much good has come out of any of it. I think its like Dr Driscoll says treating the symptoms as apposed to the problem. I am going to try Diamox and have read up on Hydrocephalus, the more i think i have been possibly fobbed off with “just” pots related migraine. So i cant wait to see how i go, again i am just concerned as i seem to be reacting bably with drugs that this will happen, so long as it doesnt slow my heart down, thats the main thing that is messing me up.
I know what you mean about the video, i was the same with her books. You start off reading a bit and you just know what she is talking about and carry on until the end!

But thanks for the advice, yes SSRI is what a lot of people on DI.NET talk about with more success than other durgs!
Have you tried the diamox test yet?

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