NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Pheochromocytoma that wasn't there….NIGHTMARE! › Reply To: Pheochromocytoma that wasn't there….NIGHTMARE!
Hi! Let me see what I can remember here… Singulair – a side effect is basically going freaking nuts. Caution. 🙂 Neptazane is sometimes substituted for Diamox, but both are sulpha derivatives. You can get mannitol by IV,if you just want “to see”. Sometimes your doctors can work you up to taking Diamox, even with a reported allergy. It depends on the level of symptoms. I was “allergic” to penicillin (got a rash when young) and my doctor said he thought I’d be fine (and I was). Pre medicating with mast cell treatment may actually prevent you from responding with a bad reaction to Diamox. This is definitely something to work on with your doctor!
I have the abdominal pulse, too. All tests look “normal”, but I never had it before! I assumed my aorta was larger, but it’s anybody’s guess.
Be sure to keep in touch with your doctor about any possible organ involvement. Mast cells can cause our pancreas, livers, appendix (my theory), lungs, etc. to become involved. A mast cell specialist may want to check your bone marrow.
I hope this helps. 🙂 Diana