Hi everyone : )
sorry I havent had time/head to do more reading… but I sure will asap : )
re hormones- one of our UK specialists prof howard a. bird (now retired) has written some articles on hormones and hypermobility- cause in his decades of running a ctd clinic he found he was able to ‘predict/tell’ when a patient had gynaecological problems- often before their gynae’s could and that bendy peops who took ‘progesterone rich’ pills could indeed find that they subluxed/dislocated much more frequently after being on it
so he found that progesterone seems to make ligaments laxer, oestrogen tightens it- so quite an important thing to consider re contraception
but also explains why we (and normal women too btw… there is a study on female athletes) so often just before/during (?? sorry foggy head) our periods are more accident/injury prone- progesterone levels are higher at that time
if however you have a gynae condition that is treated with progesterone… you are caught between a rock and a hard place : (
mom- phentermine? had to google that and it seems to be an appetite suppressor that can even be bought online ? and nope, no worries I wont buy it ; ) but would you have a link to that mayo study that suggested the use of it for pain? just out of curiosity… as said my chronic pain levels really have lessened a lot
the “mild hydrocephalus not being so benign and poss prevalent in EDSers with pots” theory could to my mind also explain why we c t disordered peops seem to have such ‘sensitive’ body systems overall- i.e. we seem to often have major reactions to/symptoms from minor ‘imbalances’-
diana- is that a possibility?
re diamox- I will wait till I’m seen at the autonomic clinic again and ask them about it- my gp, in one way luckily, lets me take the lead on treatment options- but I’d prefer some doc input first
oh diana- this layperson is baffled by the seeming ‘paradox’ of taking ppi=lessen acidity in stomach/digestive tract and diamox=raises blood acidity levels ?
could you please explain this to me or point me somewhere?
: ) xxg