Test was yesterday and I “failed” with flying colors! Heart rate went up by 45 bpm over supine. Barely made it to the 10 min mark so that they could do the second blood draw for catacholemine levels. BP started to nose dive and I was about to pass out, but since they had all the data they needed they lowered the table before I passed out (nice of them, eh?). So, yes I have POTS and have a vasovagel component too. Dr. starting me on midodrine. I know some people get really bad headaches from it. Wondering if others in this community have had that problem? I’m hoping being on Diamox will continue to keep them mostly away.
So, going off most of my meds was enough to at least get enough of a response for the TTT. Not sure about the catacholemine levels yet. Now, I am still paying the price from being off the meds, feeling cruddy, back of my head killing me (haven’t started the midodrine yet), etc.
One interesting thing I have discovered is that I take a compounded capsule of Ketotifen and Cromolyn and I wasn’t sure if it was doing anything for me or not? Well, going off it I was getting what I thought were hot flashes, but when I go back on the Ket/Crom they go away, so it isn’t hormonal after all, it is mast cell flushing! Good to know!