Hi OFH,
Thanks for the reply.
No, I do not plan to have treatment until things are more developed – my fear is that I may end up with worse synptoms if I were to restenose or worse to clot etc. I am also not comfortable with current treatments to disable the valves but I believe Zamboni is current working on a device to trim the valve leaflets or similar. If I ended up with a worse problem than I started with perhaps it could give me MS!
I too wondered why the jugulars and azygos should be the only veins with problems – after all if it’s connected to EDS that could easily mean valves problems all over the body.
I have not heard of pelvic congestion syndrome before but interestingly I had to go for a pelvic U/S recently due to what I thought was pain in my right ovary – the scan was all normal but the gynae did say that the pain was very low for ovary pain, close to the iliac *something* (I missed what he said exactly) so perhaps that’s more vein related pain.