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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Jugular Valves

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Jugular Valves › Reply To: Jugular Valves

September 7, 2011 at 2:58 pm #1454
Chicken Boo
Participant

Hi OFH,

Thanks for the reply.

No, I do not plan to have treatment until things are more developed – my fear is that I may end up with worse synptoms if I were to restenose or worse to clot etc. I am also not comfortable with current treatments to disable the valves but I believe Zamboni is current working on a device to trim the valve leaflets or similar. If I ended up with a worse problem than I started with perhaps it could give me MS!

I too wondered why the jugulars and azygos should be the only veins with problems – after all if it’s connected to EDS that could easily mean valves problems all over the body.

I have not heard of pelvic congestion syndrome before but interestingly I had to go for a pelvic U/S recently due to what I thought was pain in my right ovary – the scan was all normal but the gynae did say that the pain was very low for ovary pain, close to the iliac *something* (I missed what he said exactly) so perhaps that’s more vein related pain.

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