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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Two weird eye things

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Two weird eye things › Reply To: Two weird eye things

January 13, 2012 at 2:55 pm #1667
samiamisme
Participant

Hi Dr. D,

I couldn’t find my son’s medical records, not all of them anyway. I called his old pediatrician and they will look for them but it’s difficult since they’re archived. I don’t ever remember the doctors measuring head circumference. Do you think this was routine in the early ’90’s? If hydrocephalus was an issue, would he have had a larger head (noticeably)? I’ve never noticed that he was anything other than average (well, really I think he’s exceptional, but there may be some bias there :).

At 19, he has a larger frame, but seems proportional to me. He thankfully doesn’t have cataplexy but he does have morning paralysis which has been controlled by meds, which also have reduced his headaches significantly.

I asked my mom about my head circumference and she also said she doesn’t remember anyone measuring me (must run in the family). She did say that she suspects they did because the doctor commented the first time he saw me that he was surprised that my head was so perfect since I was a preemie (2 months). I guess preemies have higher foreheads and I do not. I can’t find my records either. We were military and lost many boxes of things over the years and I suspect they were among them.

I’m not really sure where to go from here. Do I ask for more tests for his eyes? What kind would they be as it seems he’s had all the ‘special’ eye tests that a neuroophthalmologist did.

Thank you for your information.

Sherri

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