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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: dermatographia, anyone?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › dermatographia, anyone? › Reply To: dermatographia, anyone?

June 18, 2011 at 11:50 am #1240
Dr. Diana
Keymaster

Hi Bearcat,

Well, I’ve learned that not only is dermatographia (mine isn’t raised, either) is not only a histamine reaction, it can be a sign of mast cell disease.
Since I posted the question, I’ve jumped on the mast cell bus and my kids and I are taking double dose Zyrtec and Zantac (ask your doc!) until we can see the mast cell specialist. WOW, is it helping!! Meanwhile, I learn that mast cell dz and EDS/POTS are often related. Holy cow!
I think I know why, and am writing Part 2 of my theory. Did you see Part 1? I’ll have a page for it, but meanwhile it’s the first reference under the video called “Why EDS/POTS patients are so ill”. Please take a look! The references for the paper are all listed with links to the articles. 🙂 Any you may want to peek at my 2 videos about my symptoms and see if some of it sounds like you. Feel free to holler back if you have any questions, OK?
Big hug…

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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