Back with good news! My daughter took 62.5 mgs of diamox last night and 2 hours later she told me not to get too excited, but her headache was easing and the dizziness was less too. When she got up today, the headache wasn’t completely gone but much reduced. A ‘2’ instead of the normal ‘8’ on the pain scale. That in itself is a huge improvement and I think it is just the beginning.
Interestingly, her positional blurred vision (when she turned her head to the left, her right eye blurred and vice versa) is essentially gone this morning and she no longer feels dizzy when she turns her head. She says it still feels ‘weird’ to turn her head, like it is too tight, but I suspect when we get the dose just right, that weird feeling will ease as well.
No problems tolerating the diamox thus far, but we will certainly keep an eye on her! We will bump the dose up to 125 mgs tonight and see if we can get rid of the headache completely.
At any rate, I feel like we have been granted a miracle. Dr. D, there are not words to express how grateful I am to you for putting this info out to help people like us. You have given my daughter a chance at living a full life by sharing your knowledge. All I can say is thank you – and I will continue to share the Driscoll Theory with anyone who will listen!