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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Excitotoxin's and EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Excitotoxin's and EDS › Reply To: Excitotoxin's and EDS

June 25, 2011 at 10:59 am #1263
Dr. Diana
Keymaster

There is a wealth of information in this brain trust! My tremors are worse in the morning, which I attributed to my poor drainage of CSF and veinous blood out of my brain causing my head pressure to increase in the supine position. I’m also on xanax and diamox (both are listed as treatments for tremor. Amazing.) So those likely help, too.
With mast cell disease, on the mastocytosis society web page, they have a list of “triggers” and MSG and coloring and flavorings are right there, too. So mast cells may be involved. There’s some evidence that artificial sweeteners mess with our blood sugar, too, so I’ll throw that in the pot. Finally, some of these artificial sweeteners increase acidity in our bodies, which isn’t healthy, but it prevents diamox from taking pressure off of our brains if our CO2 dips below 22, which it can do quite easily.
So for now, I think most of us try to keep sweeteners down to a minimum, ditto MSG. This deserves research FOR SURE. 🙂

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