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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Introduction- new to forum

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Introduction- new to forum › Reply To: Introduction- new to forum

November 14, 2011 at 9:01 pm #1581
Dr. Diana
Keymaster

Hi Tracey, you are too kind. Thank you for the virtual “hug”. Right back atcha’!

Just a couple of comments — when you start Diamox, please take your first dose right before bed time — it will give you the biggest effect then, since we don’t drain CSF very well while lying down.

Cromolyn sodium is so important (just ask a formulating pharmacy to make it for you — your can save about $1,000 a month!). And stick with it! It takes 4-6 weeks of consistent dosing to get the effect.
Xanax also calms mast cells! I never miss a dose.
No NSAIDS, OK? They cause mast cell degranulation. Yikes.
I’m so excited you are still working! Rock on, my friend and please let us know how your appointments go, OK? Big hug, Diana

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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