Hi Tracey, you are too kind. Thank you for the virtual “hug”. Right back atcha’!
Just a couple of comments — when you start Diamox, please take your first dose right before bed time — it will give you the biggest effect then, since we don’t drain CSF very well while lying down.
Cromolyn sodium is so important (just ask a formulating pharmacy to make it for you — your can save about $1,000 a month!). And stick with it! It takes 4-6 weeks of consistent dosing to get the effect.
Xanax also calms mast cells! I never miss a dose.
No NSAIDS, OK? They cause mast cell degranulation. Yikes.
I’m so excited you are still working! Rock on, my friend and please let us know how your appointments go, OK? Big hug, Diana