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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Excitotoxin's and EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Excitotoxin's and EDS › Reply To: Excitotoxin's and EDS

July 25, 2011 at 6:35 pm #1335
Deb
Participant

I wish there was a ‘like’ button after each comment because I can relate to all of you. I’m just learning about the mast cell activation issues and the symptoms of histaminosis. I think everything you all wrote seems to all be connected to this issue.
I can’t touch artificial sweeteners, MSGs, nitrates or nitrites and many other triggers. I sometimes have to be careful with nightshades but inconsistencies with symptoms is common for mastocytosis.
I have been trying to figure out the chicken thing for years. I know when I eat chicken I may have an unbearable itching in my hands and maybe my feet. I know now that it must have sat for a while after it was cooked (refrigerated or not) and the histamines built up in it. That can happen with any meat.

I had severe reactive hypoglycemia my entire life. I’m not sure how it connects but I suspect it does. The doctors have been trying to figure it out for decades and are still amazed. One just had me repeat my 5 hour glucose tolerance test that I had in 1990 to see if it has changed. I don’t have the results yet but I crashed 3.5 hours after drinking the glucose just like I did in 1990. I was so dizzy I could hardly walk and my hand was shaking so bad I’m not sure how she got the needle in there. They used up all my veins and I’m still very bruised from it. I suspect my sugar dropped to about 30 like before. They didn’t check my urine this time but last time I was dumping sugar in my urine when my blood sugar was already too low and my insulin numbers were still climbing. That is what amazes the doctor and I think it is a result of a dysfunctional autonomic nervous system not regulating my body correctly and over reacting to a stimulus – sugar.

I shake when my sugar is not low sometimes too from many other triggers.
It’s nice to be figuring a lot of this out after 38 years of mysterious issues.

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