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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Does this joint problem sound like EDS? Any tips?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Orthopedic/Joint › Does this joint problem sound like EDS? Any tips? › Reply To: Does this joint problem sound like EDS? Any tips?

July 25, 2011 at 9:15 pm #1337
Deb
Participant

I have hip pain too but I also have amazing flexibility. I have to keep my feet up or blood pools to my feet. So I sit at my desk either indian style or like right now with my feet sort of tucked under me but to one side slightly. I have to move very often or my hips will hurt later too.
When I’m not at my desk I prefer our love seat that is like a double lazy boy. I always pull the foot rest up when sitting there too.
I have exactly the same problem with chiropractors. They have told me I’m hypermobile and so I stretch too far when they are trying to get me lined up. But it feels like I’m back out of place within hours.
My husband got a video about home chiropractic and he learned many of the basic moves to keep me lined up. He knows how to get my hip back right and has to get my back almost every day.

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