I have a clinical diagnosis of Lyme, Babesia and Bartonella. Labs do not show it, but I have not gone through IgeneX. The Lyme itself hasn’t been active since Oct of last year, the babs comes and goes and the bartonella has shown up only recently (knew it for over a year). Have labs VERY positive for chronic active HHV-6, Coxsackie A, EBV and a lab indicating past or weakly current infection of mycoplasma pneumoniae. My CD-57 is very low (CD-57 has been used to track Lyme recovery status but other infections like HHV-6 and mycoplasma also lower it) and I have labs showing my genetic susceptibilities (Shoemaker’s research), C3a and C4a and TGF beta 1. My Sed Rate was normal only a 1, so I’m waiting for result on CRP and will have mold antibodies drawn next, considering my moldy living situation. Don’t have labs for TNF, IL-1 or that, but will be glad to send you what results I do have. Can they be sent by email? or fax? I have joint pain everywhere, CFS, MCS, POTS, and definitely JHS if not a type of EDS. Thanks! 🙂 KC
See? We’re getting somewhere already. Many of us with EDS have very low CD-57 panels… Feel free to send me what you have via my contact page on the website, if possible. Cool? big hug…