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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Chronic Lyme, anyone?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Chronic Lyme, anyone? › Reply To: Chronic Lyme, anyone?

September 7, 2011 at 3:43 pm #1456
ourfullhouse
Participant

Sorry, should have added this before I sent the above post….

One of the weird things I have in my blood that my doctor hasn’t been able to figure out, is that I have high CIC’s (circulating immune complex’s). Specifically, CIQ Binding Assay and Raji Cell Immune Complex Assay.

For several years when he used his standard lab to run the Western Blot for Lymes the IGG part could not be processed due to “unknown interference”. After running this twice, about 2 years apart, then we did the Igenix testing. My doctor has speculated that my CIC’s might be what interfere with the testing. Anyone else have this happen?

I also have a weak immune system, seem to catch everything, even really weird stuff that has only been found with blood tests (like H.Pylori, C. Diff, Amoeba Hyst., etc.). Always, always have very high EBV antibodies.

Okay, I just found one of my labs that does have some of those tests mentioned above. This is from a Flow Cytometry, Lymphocyte Immunodef panel (?). I only see the CD56 test, not the others. Is there maybe another name for them?

2/2011
Nk(CD56)% 6.3 (ref range 3-18)
Nk(CD56)# 115 (ref range 40-500)

Also on this test my T Helper (CD4) % and # are below the ref range.

Is this of any help Dr. Diana?

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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