Hi Chicken Boo (love the name!) – did you know that Hashimoto’s is very common in EDS? Hmmm. Oh, as is hyperreflexia (expecially below the waist), CCSVI, Vit D deficiency… Interesting, huh? I was tested no less than 4 times for lyme! Do you know what your TNF-alpha, IL-1 and IL-6 readings are? We’re comparing notes! Thank you, and WELCOME to the party! 🙂
I have hyperreflexia all over! I’ve always had VERY responsive knee reflexes but my arms do it too, been that way since I was a kid.
I’m not sure if I have those measurements you’ve mentioned in my test results, I will double check but they are not terms I am familiar with.
So, are you thinking people with EDS have naturally lower CD57 scores? Meaning a misdiagnosis of Lyme or that we’re more prone to picking up bacterial infections/not being able to deal with them ourselves? Interesting either way!
MY LLMD explained to me that having a form of EDS means I am more likely to have IBS, which I do so put me on the FODMAP diet which is wroking quite well for me at the moment. She also explained that might mean I was more likely to suffer from Lyme disease than other ‘healthier’ people – what do you think?
Oh, also forgot to mention I had glandular fever too when I was 14/15 – lots of my Hashimoto’s friends have had it too. Might be of note.