I also have malformed jugular valves, especially the left one and that one will not stay open with angioplasty. My IR wants to put in a stent in my left jugular and the upper azygos (it has a web that two angioplasty’s has not resolved), but wants to see if I can wait it out till dissolving stents that are being developed in Europe are available in the US.
Have you had CCSVI treatment?
Along these lines, how many here who have had CCSVI treatment had their renal and iliac’s also looked at and treated? My IR does those veins also and on my second procedure (I went in to have pelvic congestion syndrome treated – yet another vein issue) and looked at all my other veins again and my left iliac won’t stay open and was determined to be May-Thurners Syndrome (I got a stent put in for that one). But also, my left renal vein will not stay open either, though it is only stenosed 50% (all my others are 70-80%).
So, I have two theory’s: One, if you have CCSVI vein issues, you probably have vein issues all through your body (I suspect the veins in my legs are faulty too, but haven’t had the US done on them yet). Second, in doing some research on the renal vein, it is linked to Nutcracker Syndrome and people with NS tend to have autonomic disorders. Dr. Diana, have you ever heard of this connection?