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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"? › Reply To: Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"?

February 26, 2012 at 5:39 pm #1768
judith
Participant

I´m kind of scared now, cause i read all the things you were writing. I have EDS, hypermobility type, but I never thought, I would have POTS, even when I already heard that many people with EDS have POTS too.
But when I read this, I found that it´s exactly what I experienced several times.

Oh my! Absolutely! I can never sleep on my back. When I fall asleep flat on my back I often have episodes of sleep paralysis, where I seem to wake up, but cannot move, feel very panicked, and want to scream but can’t, and am still asleep somehow, but it feels very much as though I’m awake. This never seems to happen when i lay in a different position, so I just avoid sleeping on my back now. Also, if I wake up but stay lying flat I will feel as if there is a lump in my throat, and I will feel nauseous, but sitting up seems to help. It will lead to vomiting on the odd occasion, and is much worse if I don’t get enough sleep, and the sleep paralysis is also worse if I’m over tired.

I never thought that it has something to do with my position while sleeping. It usually happened when I took a nape in the afternoon. It never really happened at night (luckly, it would scare me even more). Sometimes it´s like I want to move, and I think that I really did, but after a few seconds I realize that I didn´t move, and than I try again and it doesn’ t work. If I try harder and harder I start to panic, cause it doesn´t work. If I stop panic (which is hard 😉 ) and also stop trying to move, this scary thing stops after a while. I don´t no If it stopped after I was able to turn on my side. How do you guys get out of such a situation, except from someone is picking you up?

Since this seem to be a part of POTS and not only EDS I´m kind of wondering if I might have POTS aswell or some of the other conditions which were mentioned her. How do I find out? Is it possible to find out If I have POTS without having this tabletest done?
I´m living in Europe, so some things you recommend might not work here. Actually it was hard enough to get me diagnosed with EDS (took me 7 years of searching ). I don´t think it would be ever possible for me to be tested for POTS or anything like that or even try the diamoxthing. Any advices?

Thanks and bye bye