NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Help, I am not sure where to go from here…. › Reply To: Help, I am not sure where to go from here….
Crystal, with all your diagnosises, have you applaied for Social Security Disability? If not then do so this canhelp especially with medical care. I also want to let you know you are not crazy. Doctors do not always know how to treat correctly EDS and we have to educate them ourselves. We have to in some ways become experts in our own conditions and be educators. I would suggest you keep copies of all your medical records, so when seeing a new doctor you have everything right there. I am not sure in the state you live but there is always medicaid that can help with medical care and medications. Also in most areas there are community health centers that may be able to help as they alot of times have clinics for those with no insurance underinsured and also low income. they have many programs as most funding is federal. If not also check with Social Services where you live as they can also help with any resources of medical care where you live. Most teaching hospitals also have different programs as well. Need to investigate the resources in area and state and most importantly ask questions, if one does not know the answer then ask whom may know get names and numbers and keep going. Best of luck.