I’m so sorry for your suffering, my friend. You are certainly in the right place, however! Most of us have been in your shoes, and lack of validation is a huge problem for us all. Over time, most of us end up with a doctor or two who can help us, even if they aren’t “experts” in EDS or chronic fatigue. I hope the information on this site can answer most of your questions as you continue your search for good doctors. Did you see the portion in the book about validating the patient (written by the psychiatrist who has EDS)? I hope it is hugely helpful for you and others to understand that you are not alone, despite what many doctors may lead you to believe. Hang in, 😉