As far as the doppler ultrasound goes, the one you are having is arteries and CCSVI is about the veins. Two very different mechanisms going on in the two systems. So I don’t think it will be of any help if you are wondering if it will help you know if you have CCSVI. I had the CCSVI doppler ultrasound and have had two CCSVI venoplasty procedures, so if you have any other questions just ask. My veins are very abnormal (I have EDS too, so is that the reason?) with webs across one and my valves are malformed. That’s besides the stenosis all the veins they look at for CCSVI have. I felt really good after my first treatment, but my veins won’t stay open and there are not any safe stents for the jugulars and azygos veins.
I totally understand about the fatigue you have. It’s awful. Some days I just have to take caffeine pills to be able to get out of bed and get anything done. One thing I found out that has helped some is that I have defects in the MTHFR genes, which means I don’t have the ability to convert/absorb B vitamins from food/supplements. I have to take special formulations of B’s that my body can actually use. That makes a difference for me. I used to take B complex every day and I would actually feel worse after taking it. Or I would go get nutrient IV’s, loaded with B vitamins, and though “everyone else” feels great after one of those IV’s, I would feel ill and more fatigued. My dr tested my MTHFR genes and voila there was the problem. I mostly take activated folic acid (there is an Rx form called Deplin – but only the name brand, not the generic, works) and activated B12 injections.
So sorry you are feeling so bad and unable to work