• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Dr shoemakers protocol no adh starting ddavp

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Dr shoemakers protocol no adh starting ddavp › Reply To: Dr shoemakers protocol no adh starting ddavp

February 3, 2014 at 7:47 pm #4843
dino68
Participant

I have had POTS since I was 22, about 23 years. I was diagnosed at Mayo Clinic and Vanderbilt after 3 to 4 years of trying to get a diagnosis. Without meds, my HR increases over 100 BPM with standing immediately and stays there until I sit down or lie down. My adrenaline levels standing are over 2000 without meds. I also had severe gastroparesis. I still have it but it is not as bad. I also have chemical sensitivities and I was exposed to chemicals and that was the trigger for the dysautonomia. I did test positive for mycoplasma early on but was never treated for it because my doctors felt the test was wrong. I believe it is a common co-infection for Lyme disease. I also have a severe mold allergy. I do plan on having allergy testing done again soon and getting tested again for the mycoplasma just in case it is still positive.

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020