Ok. Now I just feel crazy. I feel like I am trying to diagnose and treat my daughter’s health problems and it is stressing me out!
After researching online for hours and hours, it seems that instead of high pressure in her head, I am starting to think that my daughter has LOW pressure (intracranial hypotension). I feel like she really could have a spontaneous low pressure, low csf volume headache, due to a csf leak. She and I distinctly remember how she used to constantly drip clear fluid from her nose when all of this started 3 years ago.
Her Cine MRI is 2 days away. My question is this: Isn’t the Driscoll Theory about HIGH pressure in the head due to the external communicating hydrocephalus? That is why the Diamox works, as it is a special type of diuretic. (right?) So if my daughter has LOW pressure might that explain why the Diamox is not working?
Am I completely off base here? She has been diagnosed with Chronic Daily Headache by the neurologist, but I just read about the use of epidural blood patches for spontaneous or idiopathic csf leaks. ???? This sounds like a possibility. I hope that the Cine MRI is capable of detecting a csf leak.
Anyone have any input about this suggestion?