Hi Ourfullhouse,
Sorry to hear you’re not doing well, it’s a frightening time when symptoms worsen. I have been on the Diamox over a year and it has brought me quite some relief and I really hope it continues.
I will make one comment on your current treatment regime and that is – SOFT collars only WORSENED my symptoms (I have Craniocervical Instability) because at my head neck junction, it allowed my head still to move independantly (in me it was backwards and forwards). I think you’ll notice the difference if you stick to a Philadelphia collar (and liners – a must!). It holds your head in a better position to enable easier CSF flow from head to spine. It soon cured my occipital pain and neck and shoulder pain. It seems a bit restrictive at first but it’s worth it and I can testify that it does get easier to wear, I hardly notice mine now.
Secondly, I have promoted the video you mention before on this site at
http://prettyill.com/forums/viewthread/67/P15/#2770
I agree, he mentions some very plausible possibilities. Certainly for those who have had head and neck injury like myself.
Barbara
(UK)