• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: What meds do those of you with Hyperadrenergic POTS take to control your symptoms?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › What meds do those of you with Hyperadrenergic POTS take to control your symptoms? › Reply To: What meds do those of you with Hyperadrenergic POTS take to control your symptoms?

February 22, 2014 at 5:49 pm #4898
GingerLox
Participant

Thanks for the responses. If you don’t mind me asking, was the beta-blocker you were on a non-selective or a selective beta-blocker that is specific to just the heart beta cells? I am very interested in the non-selective bb, since so much of our issues are systemic wide and not just directly related to the tachycardia portion of this dysautonomia. Any thoughts?

…and…Yes…my youngest daughter has been on the “antihistamines for H1 & H2/antacids/PPI/leukotriene antagonist/anti-vomiting/hormone suppression regiment” for 2 years now. She was diagnosed via biopsy with Eosinophilic Gastroenteritis of the Duodenum and Colon, which is a disease process that is a direct function of mast cells/histamines. She is followed by an amazing GI specialist, and, recently, an Allergist. Although she responded very well for a year to the initial dosing, the past year she has been struggling. We do know that these meds are still working because her most recent biopsy indicated there was improvement! We are thrilled with that outcome! And…We feel strongly that we have pinpointed another source of her stomach hyperacidity and resulting inflammation since her official diagnosis of POTS. Her blood sugar levels are completely out of whack…and now we understand why. I will post more about that later to see what everyone’s take is on that subject!

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020