Thanks for the responses. If you don’t mind me asking, was the beta-blocker you were on a non-selective or a selective beta-blocker that is specific to just the heart beta cells? I am very interested in the non-selective bb, since so much of our issues are systemic wide and not just directly related to the tachycardia portion of this dysautonomia. Any thoughts?
…and…Yes…my youngest daughter has been on the “antihistamines for H1 & H2/antacids/PPI/leukotriene antagonist/anti-vomiting/hormone suppression regiment” for 2 years now. She was diagnosed via biopsy with Eosinophilic Gastroenteritis of the Duodenum and Colon, which is a disease process that is a direct function of mast cells/histamines. She is followed by an amazing GI specialist, and, recently, an Allergist. Although she responded very well for a year to the initial dosing, the past year she has been struggling. We do know that these meds are still working because her most recent biopsy indicated there was improvement! We are thrilled with that outcome! And…We feel strongly that we have pinpointed another source of her stomach hyperacidity and resulting inflammation since her official diagnosis of POTS. Her blood sugar levels are completely out of whack…and now we understand why. I will post more about that later to see what everyone’s take is on that subject!