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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: cortisone shot flare POTS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › cortisone shot flare POTS? › Reply To: cortisone shot flare POTS?

April 20, 2014 at 3:00 am #4985
EDS99
Participant

Interesting about cortisone. I could never get the benefit of inhaled steroids (nose or lung). They would help a little, then I would plateau and by day 9,10 or 11, I was sick with an infection. IV steroids made me a mad lady once…. And very ill… which caused them to be stopped. So let’s just say I do all I can to avoids steroids. 🙂

I did want to say something about candida. About 9 months after being treated for Mast Cell issues I started in with a nasty nasal passage problem. It’s gross but I need to describe it because everyone thinks it is just a runny nose. I had a drip that was like super glue….. Not kidding. It would harden painfully. And the nasal tissue was inflammed….I could feel the blood pulsing through the skin. Sometimes my nose was so sensitive, any touch to my nose would make me wince (or ‘yip’ like a dog in pain). My allergists tried to tell me it was allergies. Duh…had them all my life and they were NEVER like this. It wasn’t humidity, histamines, etc. it ruled that out by changing the environment or with meds. Saline washes did not work either.

Well, it is now gone and do you know what did it (this us directed towards you Diana). Berberine and heavy duty probiotics. I began to see that mega dosing pro-biotics before bed helped my nise somewhat. So that is when I treated myself with berberine. Within a few weeks it was all gone. PRAISE THE LORD!!!!!! I just could not stand my nose anymore!

I truly believe that I had a fungal issue. I also saw a skin issue clear up as well as the common candida issue we women have.

So that is it. Berberine…. besides having anti-fungal properties….. does wonderful things in the gut. It has been researched and is as effective as metformin…..and that’s just one thing. It is really nice for gap junctions.

But please do work with your MD and ALWAYS consider your other meds ….. and always buy quality. Consumer labs usually is a good source for recommendations on the quality of supplements .

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