What meds do those of you with Hyperadrenergic POTS take to control your symptoms? Do most of you take beta blockers or alpha blockers/agonists? They are getting ready to treat my daughter’s POTS with beta blockers and I was wondering what meds works for others with the same hyper-adrenaline issues. Is being treated with both types of meds the answer? I would really appreciate hearing what type of results others have had with treatment to help us make an informed decision. Thanks!
Hi GingerLox,I hope to have much more out on this soon, as hyperadrenergic POTS can be one of the most miserable conditions on the face of the planet (and it is what I was diagnosed with). Beta-blockers made the doctors feel better, but made me feel worse. ha. If your daughter has mast cell issues (did she try Zantac, Zyrtec, BTW?), beta-blockers can make that worse. Did she try a smidge of xanax, perhaps? It helped me. Let us know? 😉