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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What meds do those of you with Hyperadrenergic POTS take to control your symptoms?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › What meds do those of you with Hyperadrenergic POTS take to control your symptoms? › Reply To: What meds do those of you with Hyperadrenergic POTS take to control your symptoms?

February 22, 2014 at 9:52 pm #4899
Dr. Diana
Keymaster

Hi GingerLox, I know that some folks do well with heart-specific beta-blockers and some do well with non-specific. In my case, I didn’t do well with ANY of them, and believe me, I tried them all! One thing I would mention to you is that depression can sneak up on patients on beta-blockers. Eye doctors prescribe beta-blocker EYE DROPS, and I would always ask the patient if they felt more out of sorts while on the drops because most patients do not link the eye drops with their mood. So as a doctor who understood very well the propensity to depression while on beta-blockers, I STILL missed it in myself for a few months! I *really* thought the depression was situational, right? WRONG! The cause of the depression finally came to me one day, and after 36 hours without the beta-blocker, I was back to my old self. Now imagine going through this 5 more times — with every beta-blocker made! Agh. With kids, I think we need to be doubly careful with them, as they won’t understand mood changes due to medication. So will you watch for signs? When a friend of mine started on them, he asked his wife and me to keep an eye out. We were both able to see his depression creep in, but he denied that it could be his medication over and over. Imagine that! He finally agreed to stop beta-blockers for a few days, and low and behold, two days later he was back to normal. He said he buried his beta-blockers six feet under at that point. ha. So, keep a watchful eye? And eosinophils! Yes! Many of us have them in our esophagus, too. Do they think the eos are the cause of your daughter’s high stomach acid? Thanks, and hang in! 😉

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