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I am new here, and hope everyone is well. (or as well as they can be)
I have been battling Dysuatonomia and CFS for about 4 years now and have been evaluated by some of the top doctors in each specialty. Yet, I have never asked or been told what type of Dysautonomia I have. For the longest time I was able to “push through” my symptoms and work full time and go to school. I always had cold feed and horrible raynauds during this time. I often felt very anxiety driven and energized. However, very recently I feel like something very physical has changed in my body. I no longer have any of those high energy sensations and my hands and feel often are very warm. I have become much more faint and feel dizzy almost all of the time. This has all occurred over the last month after what I thought was going to be a week crash, however it has not gone away. Does anyone here have any experience with neurology or neurotransmitters. I feel like something very neurological has changed with this crash. Whatever compensatory mechanisms were in action before, do not seem to be working any longer.
Welcome, kms1990, it sounds like you have “idiopathic dysautonomia”, meaning, no one knows what the cause is, but it is likely not the fatal kinds (such as ALS, etc). It is unclear to me if you have fatigue (mental and/or physical) with your crashes? That is what happened to me — but it took about 3 years. Like you, I felt like I was ‘running out of something’. I just didn’t know what! We all seem to have neurotransmitters gone crazy! The Symptoms Checklist may help us. Can you complete it and get it back to me (just remind me who you are). The checklist is listed under “Articles and Handouts” on the home page. Hang in, new friend. Big hug…