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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: what is going on… MCAS?? anaphylaxis??

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › what is going on… MCAS?? anaphylaxis?? › Reply To: what is going on… MCAS?? anaphylaxis??

August 7, 2013 at 10:37 pm #4067
Lab-Scientist-Lady
Participant

I don’t know the answer to your questions, but as a kid I had the same thing happen with my tongue and mouth. Since I was a kid I never told anyone, but I remember it happening at weird times. It would even happen in the middle of the night. The sensation was so weird and uncomfortable that I still remember how it felt. It would rarely happen when I ate, but the only food I am allergic to is swiss cheese. I also, have bad reactions to bug bites. Mosquitoes love me and I get huge itchy welts from them, and my children do too. Now that I know I have EDS I know it is all related. Maybe Dr. D can answer you. I want to know the reason too. Is it common for those with EDS to be Mosquito magnets?

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