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August 19, 2013 at 2:47 pm #4135
Some of us actually have “Super-sonic” hearing (me, too!). But if we get CSF in our middle/outer ear, all bets are off! Sticklers syndrome can cause hearing loss (video coming out on that next week). That may be worth exploring if your hearing loss consistently stays in the dumper… My husbands cousin may have that! Talk about ‘inbreeding’! ha.
Since Sticklers syndrome is caused by the same Collagen deficiency that is seen in the classical form of Ehlers-Danlos, is that something that people with classical EDS need to worry about?