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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Has anyone tried LDN and became a tighter or more together EDSr?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Orthopedic/Joint › Has anyone tried LDN and became a tighter or more together EDSr? › Reply To: Has anyone tried LDN and became a tighter or more together EDSr?

September 5, 2013 at 2:46 pm #4288
Lab-Scientist-Lady
Participant

No you can not use it with opioids because it is a opioid receptor antagonist. Its action on the o receptors stimulates endorphin levels and I believe opioid growth factor. PEA (supplement sold in Europe) can be used with opiods.

Be careful. From what I am reading long term opioid use or very low opioid dosing (I think) can make for more pain. Opioids are god for short term. Pople who use opioids would need to come off of them to get on LDN.

Are you from the Dallas area? My PT just started there. She is VERY good and knows EDS… She is a 3rd level certified dry “needler”, DPT, LMT, & CERT in conditioning.


Sorry I did not see this sooner. I am in the Dallas area. What is your PT’s name, and is she in Dallas or somewhere nearby? I have been doing PT and other things for years without success. My body does not respond well to intervention. The narcotics were last resort, and I have been on them for a 1 1/2+ years. They help some but not enough. I have not tried dry needling. How is that suppose to help? I think my body would react poorly to that.
Shonda

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