I am 10 days into trying this for pain. It been used by other EDSrs who have had a good run (I also have auto-immune hx as well as cancer hx so it makes sense since it is protective). I’m not feeling the same as other EDSrs report. So just wondering if others here can share their experience.
EDS99Hi EDS99, I think this may be the right place for this question, actually! I’m curious what others think. I’ve never tried it because I never had pain (until NOW — Gads.) But I know a lot of folks who use it with mixed success. I’m trying to figure out the SOURCE of the pain, and am working hard to do so. I make my husband nuts as he often says, “Why don’t you at least TRY something for the pain?” My response is if I cover up the pain, I’ll never figure out the SOURCE of the problem, and which treatments hit the source. But this is not something you all will want to try at home. Trust me. If you can get pain relief, the quality of your life will go up. I’ll continue to work ‘in the background’, if you will, to locate where our bodies are going wrong. I don’t think “joint hypermobility” is the true source. After all, I’ve been hypermobile my entire life, and never experienced pain until now. So what just happened? That’s what I’m working on! So, anybody else try LDN? I understand it is supposed to help with other things beyond pain — am I right? Interesting topic!
Sorry this is in “orthopedic joint forum”. How do I change it to the right place?