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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: what is going on… MCAS?? anaphylaxis??

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › what is going on… MCAS?? anaphylaxis?? › Reply To: what is going on… MCAS?? anaphylaxis??

August 8, 2013 at 9:20 am #4071
charlie1
Participant

Hi there LabsciLady! I have never had these things happen to me before other than just recently. The tongue swelling to the point of interfering with speech was scary and I don’t want it to happen again! I read its very rare, but since I’ve upped my midodrine dose lately, I’m thinking its possible I reacted to that. Pretty unlikely though b/c I’ve been increasing it slowly over the past month. Started at 2.5 mg 2x day (which did not increase bp at all) and presently I’m at 5.0 2x/day so that’s pretty low still. I’m grasping at straws until I get an app’t with my doctor hoping she’ll refer me to an immunologist.
As for the bug bite, it wasn’t a mosquito. The very small bite never swelled at all even though I would itch it constantly. The redness and swelling occurred beside the bite and was about 20x larger than the bite itself!
Hard to say what’s going on.

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