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I do have a problem with loud noises and certain noises bother me. They really, really, get on my nerves. I only have trouble understanding some conversations when there is a lot of back ground noise present, and sometimes I have troubled hearing conversations on TV.. I though I read somewhere where the small bone and joints in the ears can be damaged in persons with EDS. I can not remember if I read that or made it up. I ask because my Geneticist kept asking when my last hearing test was and if I had hearing problems. I should have asked her more questions about it. Is hearing loss a concern in EDSers?
Shonda, Hydrocephalus can cause this problem, as can Sticker’s. I’m sorry I don’t recall if you have hydrocephalus? Some of us with EDS have “super-sonic” hearing!! 😉
Hi Dr. Diana,
I will find out soon if I have hydrocephalus. I have an MRI tomorrow. I believe I do. After filling out your symptom check list I had all the symptoms. Plus I always have a fullness in my ears and head. My son also has extreme noise sensitivities. He is always plugging his ears. He and I both are always in search of a quiet place.