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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: EDS and Hearing Problems

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › EDS and Hearing Problems › Reply To: EDS and Hearing Problems

August 22, 2013 at 5:43 pm #4178
Dr. Diana
Keymaster

Hi Dr. Diana,
I will find out soon if I have hydrocephalus. I have an MRI tomorrow. I believe I do. After filling out your symptom check list I had all the symptoms. Plus I always have a fullness in my ears and head. My son also has extreme noise sensitivities. He is always plugging his ears. He and I both are always in search of a quiet place.
Shonda

Hi Shonda, Please don’t forget a copy of your MRI disc while you’re there, OK? Then we’ll arrange a visit to the specialist with everything in hand and get you started. As far as the MRI report, we can almost just throw it away, if we’re expecting the radiologist to pick this up! This is one reason we’re running the study — to gently remind the doctors about this “forgotten” form of hydrocephalus. The other reason is to run these special tests on the eyes to see if we can get some objective measure of this pressure. We really should try to avoid lumbar punctures (they don’t heal well with us, and they can cause a Chiari — Yikes). I can hardly wait to get you started!!!! 😉

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