Hi Dr. Diana,
I will find out soon if I have hydrocephalus. I have an MRI tomorrow. I believe I do. After filling out your symptom check list I had all the symptoms. Plus I always have a fullness in my ears and head. My son also has extreme noise sensitivities. He is always plugging his ears. He and I both are always in search of a quiet place.
Hi Shonda, Please don’t forget a copy of your MRI disc while you’re there, OK? Then we’ll arrange a visit to the specialist with everything in hand and get you started. As far as the MRI report, we can almost just throw it away, if we’re expecting the radiologist to pick this up! This is one reason we’re running the study — to gently remind the doctors about this “forgotten” form of hydrocephalus. The other reason is to run these special tests on the eyes to see if we can get some objective measure of this pressure. We really should try to avoid lumbar punctures (they don’t heal well with us, and they can cause a Chiari — Yikes). I can hardly wait to get you started!!!! 😉