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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: I think I might have a CSF leak

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › I think I might have a CSF leak › Reply To: I think I might have a CSF leak

November 30, 2015 at 11:11 pm #5733
spdsk8trgrl
Participant

Maybe call your regular doc and see if you can get a sterile tube to collect fluid in, and see if your doc is able to just order the beta transferrin test with the associated blood draw. It seems like a pretty basic lab, I only went to ENT because I have very complicated headaches and I was looking for more opinions and they happen to be familiar with csf leaks. There are also ways to try to trigger more fluid called valslva maneuvers, usually involving straining or bending forward, but I would only do with a doctor helping.

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