Hi Joejack, I’m so sorry you’ve been suffering for so long, but I absolutely believe you are sick. Not uncommonly, many of us don’t get the validation we need, despite our suffering. Until we have better labels for many of these issues, this lack of validation will likely continue, unfortunately.
🙁 Your case sounds extraordinarily complex (not unlike most of us, frankly). Because you had POTS for many years, but now do not, something has clearly changed. Unfortunately, I can’t tell what that is,
and don’t have any easy answers for you. My research into acetylcholine resulted in answers for so many of us, but when a patient is as sensitive as you are (again, not uncommon in many of us), unless we can be sure of the quality of the supplements you took, we have a wild card out there. You may have had some reaction to a contaminant or additive, for example. It’s hard to know. Meanwhile, at POTS Care, we are getting closer to taking on cases such as yours, where you may not have frank POTS, but we may be able to help by digging deeply into your case. We promise to keep you all posted as we work toward making headway, OK? Hang in, Joejack!