NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDNF Conference in Rhode Island Aug 1-3rd › Reply To: EDNF Conference in Rhode Island Aug 1-3rd
Hi Dr. Diana. That is totally nuts! You were scheduled to speak yet they tell patients not to see optometrists? Huh?? Am I missing something?
Various organizations having the same goal with respect to educating those in need. That’s what we all assume is happening but never think much of what might be going on behind the scenes. I can understand why you would still be hurt.
We will not be going to the annual conference. I am too nervous that my health will nose dive after the flight and I’d be stuck in the hotel instead of learning more about EDS and the possibility of me having it. I’ll continue to educated myself through terrific sites such as yours! Thanks for all you do.
Thanks for understand, Charlie1. I hate to expose patients to the behind the scenes stuff (we are already under so much stress!), but I also don’t want folks to think I’m being a snot. ha. I’ve seen more “politics” in medicine than I ever though possible. Crazy, huh? Oh, I understand what you mean about not knowing what will happen if you fly. Once I flew to see a specialist, and not only could I not get out of bed to get to the doctor, I couldn’t even get up to answer the phone! GEE-OSH. Flying is a roll of the dice, sometimes! 😉