I do so agree. I want to stay at Dr. Diana’s house! Lol. Really to have someone understand what you are going thru and want to do testing to help! That would be so great. The physical problem is awful, but the lack of understanding, support and belief make it almost unbearable. I looked up one list for autonomic experts and for my state there was one. And the one listed works with regular pots and feels exercise is the key, so I don’t think he will help with this type. I have a huge university hospital not too far away, and they do not have an automonic clinic/dept! I am going today to my gynecologist. It was supposed to be for a check up, nature has decided that will not happen today (its always somethin lol) but I am still going to insist they run my hormones. Last time I asked I wasn’t as ill and they insisted I didn’t need them, but today I am going to be firm. I need them run, the electrophysicist suggested they run them. Maybe that will hold more with them. I do wish Dr. Diana or her clone lived near by!
Just a quick update: Saw the doc above and he suggested I go to Cleveland Clinic or some clinic in Texas, I think he said the Anderson clinic. He also said I had WAD, a Weird A** Disease! He is a riot, but said the doctors are not going to know what to do with me, I am too “weird” and need to go to Cleveland. So I will try there! On a positive note, I drove myself to appt. and did not have an episode.