Hi, sorry you are suffering so much. I think it’s particularly bad if you are normally very healthy and active, and then suddenly not. I have only been ill relatively recently without answers, at least yet, so know how dismal you feel. Firstly just to address your comment about waiting lists, these probably vary, I am not sure which type of consultant you mean. Are you specifically talking about a POTS specialist? There aren’t many about. Prof Mathais in London is considered the best in his field in the UK, and a Prof Grahame, same hospital I think, a rheumatologist who understands EDS and its relationship to dysautonomia, if indeed this is your problem (which I am not sure in your case). Have you spoken to your doctor or gp about all your symptoms and concerns?
But no it certainly isn’t normal to be dizzy 24/7. That sounds very debilitating and you certainly need an evaluation. Lots of things can cause dizziness but 24/7 is extreme. Do you have any ear problems? Can I ask how old you are? Certain things are more likely to be common in older people, and other things more probable in younger people etc. the stomach rumbling, well it depends if its in combination with other bowel issues, like reflux, nausea, vomiting, bloating, diarrhoea, blood etc… By itself it doesn’t sound troubling just an annoyance. I’m sure lots of people who have IBS will tell you, a gurgling bowel is very annoying! I’ve had that too, and often when you want it least, ahem in meetings, lecture theatres…. Joking aside, please go back and see your gp and discuss your concerns. Book a double appointment if you have to or can. If you not satisfied with your gp, see a different one, or consider a different practice. GP’s are as variable as anything…
Just to say the experience of POTS can be mild to incapacitating, so yes I’m sure dizziness is possible 24/7 but isn’t normal of POTS. People are often more light headed and sweaty, like they might faint, some do faint. Not sure you had this. Like I say try and see somebody. Helps to have someone along at the consultation…
When you take your BP and heart rate from sitting to standing, how much does it rise by? Rises in both are entirely normal, it depends if you have symptoms, which you do, so just to establish possible POTS, need to know those figures, so you can present to your gp. He/she will check them again I’m sure….