We changed the date because I just couldn’t get $1000 for each ticket to get there. We are now going on Jan 15, got the flight taken care of already.
The RMH says on their site that it is for kids with at least 3 appointments in a week, so didn’t think that was an option. I did find out that there is a site called Joeshouse.org that will give discounts on lodging. It states for cancer patients but I emailed them and they will help with most illnesses.