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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Diamox is making me feel terrible

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Diamox is making me feel terrible › Reply To: Diamox is making me feel terrible

January 22, 2016 at 10:22 am #5811
Mandylc9
Participant

I had an awful low pressure headache for two weeks after, I’m pretty sure I didn’t heal well because that headache returned a month later. So it was difficult to tell but my pulsatile tinnitus vanished for about 5 days and my nose felt clearer like I could breathe. I have a constant blocked nose feeling the ENT said my passages had just narrowed, some days on Diamox I can feel I can breathe a little better.

I feel like it is the nature of chronic illnesses, second guessing everything. I just know when I saw your videos I cried because I felt like my symptoms were being explained and it was such a relief, getting the help is difficult. I know what I need to look into though, EDS seems possible as could mast cell issues. I need to remember the feeling I had of relief that I could possibly have found some answers and give the Diamox longer.

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