Hi Elizabeth. Start by reading The Driscoll Theory part 1 and 2. Dr. D explains a lot in these two documents. The Beighton is only the initial screening. Some suggest the Brighton Criteria as more comprehensive. You might want to google and look up Brighton Criteria. Some people can be double jointed and not have EDS, but once you start having other issues it starts to look like a duck and quack like a duck. Check out that info and let me know if any of it helps.
Thank you for the info. I definitely have all the double jointed stuff but, looking at the brighton criteria I don’t think I have any of that. Other then the wrist thing. I don’t think this relates to eds but being that it is rare I will mention it. I had a bone in my wrist lose blood supply to it about 10 years ago and had surgery for it. I think this is probably something totally different and doesn’t relate though.
I have been reading the Driscoll Theory and it is very helpful. I think I will have to read it it a few more times to really understand it and take it all in. So grateful to Dr. Diana for the the information! Thank you for responding also!