Hi Elizabeth. Start by reading The Driscoll Theory part 1 and 2. Dr. D explains a lot in these two documents. The Beighton is only the initial screening. Some suggest the Brighton Criteria as more comprehensive. You might want to google and look up Brighton Criteria. Some people can be double jointed and not have EDS, but once you start having other issues it starts to look like a duck and quack like a duck. Check out that info and let me know if any of it helps.