Hi,
It’s common not to have all of the traits of one classification of EDS. Many of us have features from another classification, like the vascular type, they seem to overlap. I have been diagnosed with EDS Type III but I don’t have much in the way of hypermobile joints either (other than my knees). I have to say and I don’t have stretchy skin but I do have soft skin and fragile skin, which splits, or breaks down very easily. I do have the velvety skin and also my veins are prominent across my chest (looks like a road map!). I have a minor problem with my mitral valve (and possible aortic insufficiency according to some old medical notes).
I have scoliosis (twisted back) to some degree, which seems common and have suffered various types of low back pain some due to rogue disks, the latest I think due to dural ectasia (coccyx pain) another common denominator according to The Driscoll Theory. I had varying degrees of sciatica, over the years. I have had varicous veins since a child too. recently read that many EDS’rs have a bit of an indent at the top of the nose, where the cartilage is not as prominent as the bone, I have that too.
I was always going over on my ankles and knees as a child and had a lot of sharp pain in my chest, between each rib when I tried to breath, it would last a little while then go off but it happened often. Does that sound like what you had ?
My mother, however, had more classic symptoms – a high palate, could touch her wrists with her thumbs, had a heart murmur and dropped arches (flat feet) so I knew there was a possibility I could have the underlying disorder.
Regards
Barbara
(UK)