• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: EDS without double jointedness?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS without double jointedness? › Reply To: EDS without double jointedness?

May 18, 2012 at 9:40 pm #2183
Barbara
Participant

Hi,
It’s common not to have all of the traits of one classification of EDS. Many of us have features from another classification, like the vascular type, they seem to overlap. I have been diagnosed with EDS Type III but I don’t have much in the way of hypermobile joints either (other than my knees). I have to say and I don’t have stretchy skin but I do have soft skin and fragile skin, which splits, or breaks down very easily. I do have the velvety skin and also my veins are prominent across my chest (looks like a road map!). I have a minor problem with my mitral valve (and possible aortic insufficiency according to some old medical notes).

I have scoliosis (twisted back) to some degree, which seems common and have suffered various types of low back pain some due to rogue disks, the latest I think due to dural ectasia (coccyx pain) another common denominator according to The Driscoll Theory. I had varying degrees of sciatica, over the years. I have had varicous veins since a child too. recently read that many EDS’rs have a bit of an indent at the top of the nose, where the cartilage is not as prominent as the bone, I have that too.

I was always going over on my ankles and knees as a child and had a lot of sharp pain in my chest, between each rib when I tried to breath, it would last a little while then go off but it happened often. Does that sound like what you had ?

My mother, however, had more classic symptoms – a high palate, could touch her wrists with her thumbs, had a heart murmur and dropped arches (flat feet) so I knew there was a possibility I could have the underlying disorder.
Regards
Barbara
(UK)

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020